Uncovering the hidden truth

In talks with advocates and others in the fight for autistic civil rights, there are some practices that go on that encourage a. masking covering the autistic traits ignorance and general misinformation about the true and genuine autistic narrative, and a lot of are from well-meaning people who want to understand but don’t. A conversation I have had so many times, was oh “you don’t look your autistic” because people just do not know enough about it, because there aren’t enough autistic people in the positions of power dictating the narrative of autistic advocacy and support for autistic people and improve narratives to help improve autistic representations . This will help change the Abelistic language used to describe Autistic people and their culture because currently, this happens everywhere and what makes it worse is that neurotypicals have the most influence over the support autistic people receive.

The lack of representations and proper information being the hands of those in power is that because of this the culture of ignorance and hate thrives even in the most unexpected of places even amongst some in the activism and advocacy forming the way for more hate continue. Hate and internalised Abelism on both sides of the discussion autistic and non-autistic and this contributes to the article written in the guardian by Tom Clements being written. “Yet a report this week claimed that the difference between people diagnosed with autism and the rest of the population is shrinking ” That’s just not true. While it is true it is a broad spectrum covering a variety of things, the conversation around autism, the fact it is viewed as a neurotype, rather than a condition or a disability we will be able to direct our information and research in the right way. An activist I know from oxford has said that the difference between autistic brains and neurotypical brains is clear but it is complicated, and it’s true it is complicated more research needs to be done by academics like Dr Damian Milton, the definition of Autism is Vague but that’s because of ignorance disinterest or patience care asymmetry. The article while trying to highlight the issues faced by very high care autistic people or low functioning autistic people – a term I detest but is used in the current discussions.

A lack of information has contributed to abuse within the family that’s not viewed as abuse but good support or other things, let me explain. For this, I will share a personal story and the reason why I have started the Autism Leauge. I have had this friend the best friend I could ever have, who helped me when I was most struggling, and in pain despite the fact she had her own problems and struggles within her family she put it aside to help me through mine, which touched me and broke my heart a little bit that someone I care about, was stuck in that position and given the fact she is my best friend I was looking for all the help I could give and still am. Her parents were triggering meltdowns within her, and neither did my friend (the autistic one ) and her parents knew what it was and what that referred to and why that was happening. Well, my friend knew why the meltdowns occurred if I am being honest and she can’t articulate that to her family and thus it continues. Her parents and family are lovely people and they do not mean to do harm to each other they are very nice to everyone to me, to anyone who they meet, but because of the fact they do not have enough facts that particular type of dysfunction continues.

So where do we go from here, how do we change and make lives better for autistic and non-autistic people alike create a space for communication and support for the people we love. Well, we should create a new dialogue, between support systems the people who are responsible for that, well-meaning people and informing them , about how to support autistic people and how we are., our strengths our weaknesses, what we are good at what we are good at, move away from the medical modal .and think about it as a way of being rather than a condition with symptoms re characterise it change the language. An example quote from a reliable website the Aspergian “At least, autism rates aren’t escalating at the level mainstream outlets perpetuate.  More people are being diagnosed because we have a better picture of how autism looks across the whole of the spectrum, especially for women” Understanding is on the rise, a lot to do with better information but more importantly, autistic voices are finally starting to get out and we need that to be on the rise more than it currently is, we need to take the fight to the people in power and change the hearts and minds of the people who will make the decision and as always the Autism League is here for you in this fight and we will support you.

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